Eve has a fever

So, we gave Eve a haircut a few weeks ago. It was getting long, and I was tired of having to put pigtails in to keep it out of her face. The stylist cut it short. It's much easier, but I'm getting used to it. Today I thought she looked like Shiloh Jolie-Pitt (cute). Tonight we realized it's much more serious than that. There's a certain......side effect....of the new haircut. After her bath and blow dry, we noticed something terrible....



Yes, it was unmistakable........






Eve developed Bieber Fever.

For those of you who don't have a TV, the internet, a radio, or a child under the age of 14, here's a reference point:

Sweet Eve

Two pictures of my sweetie.

Becky the school photographer

A few weeks ago, my friend Allison sent Eve a Barbie doll in a wheelchair. Eve LOVES her. She cried that first night when we told her it was bath/bed time and she had to stop playing. Who knew there was a Barbie in a wheelchair?

Eve's DAFOs

On Wednesday, we picked up Eve's new leg braces. These are the ones ordered from Cascade (similar to ones we got in GA). The orthotist picked the pattern. :) I'm not sure if he paid attention to the fact that the girls in the pattern are wearing half-shirts. Oh, well. They fit her great and are sooooo much better than her last pair of AFOs. Man, those things are crappy compared to these. I am so glad we switched orthotics places. I gave Eve's DAFOs (the old ones made by Cascade) to the new orthotist so he has examples to display in his office. I think it would be super helpful for patients to be able to see what they actually look like in person before ordering them.

trips, parade and yardwork

Eve went on a school field trip to a local forest. Here is a picture of a blindfolded Eve experiencing a tree without using her eyes. The kids had fun looking at all kinds of creepy crawlies and listening to the sounds of the forest.


We also went to our town's (very small) memorial day parade.


Jim's been working hard around the house. At the side of our driveway are these really tall ornamental grasses that I hate. They are in a bed of disintegrated mulch and weeds. This picture is from last month. By the end of the summer they will be good 5-6 feet tall and obstruct your view of the house and (more importantly) other cars as we back out of the driveway.

Jim dug them out and we moved them (man were they heavy!). We then laid down some sod and I think the improvement is miraculous! Next steps: wheelchair ramp (if you look really hard you will see the beginnings of one to the side of the steps) and hedge trimmer.

I heart Eve

On Tuesday, Eve had a cardiology appointment in Springfield. All went well. They actually managed to get a blood pressure reading on her (has never been done before while she was awake). They then did an EKG (which she cried through) and an ultrasound (which she cried through half of). She just gets so scared. Anyhow, the doctor told us that everything looks perfectly normal and that we should come back in 2 years (or if she has a major illness/regressions). The heart is a muscle, and thus can be affected by her mito.

Yesterday, we also picked up her new DAFO's. These are ankle-foot orthotics made by Cascade. They have two parts to them and are very cool. I will post pictures this weekend. Eve has no anxiety at the orthotists, btw.

The PT has written the letter of medical necessity for the special needs stroller and now the waiting begins.