Oma and Pop came to our house for Thanksgiving. It was a lovely visit. My first time hosting for turkey day. Eve had a blast. Here she is with Oma:
Oma and Pop gave Eve an early Christmas present. It's a winter cape and it's fabulous!!!!!! Winter coats are such a difficult endeavor for many reasons. First, they are hard to fit her. Her arms are so tight, you need to get a coat that is easy to put on. Second, the wheelchair makes it difficult. Once you get her strapped in, she really needs to get into the cold air or she'll overheat sitting in the house waiting for the bus with her coat on. So, this cape is perfect! I put on a fleece jacket (that she can wear in the house without getting too warm), and when the bus comes, I just drape the cape over her and tuck it around her back. It's fleece lined, super warm, and covers her legs. It's also waterproof which is great for snow and rain.
There are even two slits for her to stick her hands through. Isn't this cool?? Thanks Oma and Pop!!
You know, it's the little things that make life so difficult when dealing with a special needs child. The big things are hard, too, but the things we take for granted can be so annoying - like having warm outerwear that actually works for your child.
The purpose of this blog is to keep everyone updated on our family and the management of Eve's mitochondrial disease.
Tuesday, November 30, 2010
Tuesday, November 16, 2010
Fall 2010
I've been so busy lately, that I haven't been able to give the blog the attention it needs.
Let me tell you about Halloween. We were invited to go trick or treating with my colleagues' families. A group picture was taken, but I haven't seen a copy. I was super nervous about how Eve would do. Would she freak out? Would she hate it? How hard would it be on us lifting her in and out of her stroller. I was so worried I made myself feel a little sick. For no reason. She loved it. It took her about 4 houses to get the idea. At the first house, she cried when we left. It was like, "Why are we leaving?? They have candy here!!!" But after a while she was squealing with delight as we approached each house. It was hard work for Jim, lifting her in and out of the stroller. But she had a wonderful time.
All else is well. Eve has a stuffy nose that she can't seem to shake and has been waking up crying a lot more in the middle of the night. Motrin does the trick. I've begun to wonder if she is suffering from the same horrible leg cramps I got as a child. I'll have to ask my parents how old I was when I started getting them. I used to get them mostly at night. But other than that things are fine. I have her parent-teacher conference tomorrow.
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