Poor Eve. She's been sick since April 1st. She's got a horrible junky sounding cough. She doesn't have the muscle strength to cough productively, so she just hacks and hacks and doesn't get anything up. Sometimes, she vomits the mucous up. This is good for clearing her, but she could aspirate which is scary.
We went to the pediatrician twice, and kept an eye on her. Monday, she was very uncomfortable and moaning a lot. She also started sucking in her breath like she had a sharp pain. This continued on Tuesday and the sharp pains got worse. She'd start to cough and immediately suck in her breath and cry out. She did this if startled, too. We went to the doctor and she had developed a low grade fever. The Dr. heard the beginnings of crackling in her lungs. Eve also had smelly urine for a few days. The Dr prescribed an antibiotic to take care of both a possible chest infection and UTI. She said the pain reaction could be from sore throat or muscles from coughing for 2 weeks. It's been 3 days since we started the antibiotics. Eve is in a much better mood - laughing and smiling, which she hasn't done easily for a while. The smell went away in her urine. However, she is still coughing horribly and doesn't sound any better. She's coughing more throughout the night as well.
I'm pretty concerned. Not in crisis mode, but pretty concerned.
The purpose of this blog is to keep everyone updated on our family and the management of Eve's mitochondrial disease.
Friday, April 17, 2015
Tuesday, March 17, 2015
Snuggle time with Eve and JoJo:
Sunggle time with Seamus and JoJo:
This has been a crazy winter. I'll be very glad to see it go. We were running out of places to put the snow.
My in-laws were back up for Jim's recovery. He's doing so well, by the way. He's still in pain and gets winded easily, but he's really doing well considering they removed a portion of his lung. He still isn't lifting Eve, but I'm really enjoying having him around the house. I could really get used to this. I think he's bored and doing a little too much sometimes, and pays the price. On the whole, he's doing great. His followup with the doctor went well and his biggest complaint is nerve pain.
Sunggle time with Seamus and JoJo:
This has been a crazy winter. I'll be very glad to see it go. We were running out of places to put the snow.
My in-laws were back up for Jim's recovery. He's doing so well, by the way. He's still in pain and gets winded easily, but he's really doing well considering they removed a portion of his lung. He still isn't lifting Eve, but I'm really enjoying having him around the house. I could really get used to this. I think he's bored and doing a little too much sometimes, and pays the price. On the whole, he's doing great. His followup with the doctor went well and his biggest complaint is nerve pain.
belated Christmas post
Wow. I've really been remiss with keeping up with this blog. Here are some pictures from our January Christmas celebration with Jim's parents and brother.
This last picture makes me laugh so hard. I love Jim's face. He's in the danger zone.
This last picture makes me laugh so hard. I love Jim's face. He's in the danger zone.
Sunday, March 15, 2015
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