Eve may have had two absence seizures today. The following was written by her school aide in the communication book:
"On the bus ride to school, Eve was smiling but only the let side of her face was. [The] right side completely drooped, more so than usual. At school she had an 'episode' where I seemed to lose her. Staring off, no blinking, unable to get her attention. The first time lasted about 15 seconds, the second one during snack, lasted longer, about 30 seconds. [I] called her name, gently tapping her shoulders, no blinking no response. She seemed confused immediately after, but continued on with her snack. Very quiet, but no other episodes after that."
We have an appointment with Eve's neurologist in 2 weeks, so we'll mention this to him. We'll see what he says.
The purpose of this blog is to keep everyone updated on our family and the management of Eve's mitochondrial disease.
Friday, September 30, 2011
Thursday, September 29, 2011
baptism weekend
It was so much fun getting all the kids together last weekend. We don't get to see them very often, so it was just wonderful. It was also cool to show my brother around the area, since this is the town that our grandmother was born in (even though she spent nearly all of her life in Philly).
| Left: My grandfather in 1938 Right: the elk today |
| Dave and the kids at the top of Mt. Greylock |
| Eve, Giovanni, Alex, and Bella |
| Eve and Bella laughing |
| Trina, (a tired) Seamus, and Dave |
| Oma, (a surprised) Seamus, and Pop |
| This was one of approximately 300 shots. Five moving targets - this was the best I got. |
| How we all felt at the end of the weekend |
Baptism
This past weekend, Seamus was baptized. Dave and Trina are his godparents. He wore a baptism gown that has been in my family for decades. It was made for my father for his baptism, and just about all of us have worn it (even Eve). Seamus was so good during the baptism. Here are some shots from the ceremony:
Sunday, September 18, 2011
Thursday, September 15, 2011
Eve's 6 year well visit
Eve's eye is MUCH better. The swelling is nearly gone.
Today she had a well visit with the doctor. No biggie. She is 38 pounds and 40.5 inches tall. Still my little munchkin. Oh! And she got a flu shot and didn't cry!!! What a little toughie.
Today she had a well visit with the doctor. No biggie. She is 38 pounds and 40.5 inches tall. Still my little munchkin. Oh! And she got a flu shot and didn't cry!!! What a little toughie.
Wednesday, September 14, 2011
Mosquito 1; Eve -1
Well, the bug bite got a little worse this morning. A lot worse, in fact. We gave her some more antihistamine. It looked a lot better by this afternoon. But, here's a video of the peak of the swelling. Poor kid!
Tuesday, September 13, 2011
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