Well, we met with the Tracey (PT) and Beth (Early Intervention Specialist) today. It wasn't as bad as I thought. I think they could have given us the report and explained over the phone if we had questions.
It is written in a negative style, really pointing out Eve's deficits and the ground that she has lost. This was done for 2 reasons - to help with the Deeming waiver appeal and to help Eve's doctors see that we really need to do something here. Rather than type out the age equivalence for her specific motor skills and other areas, I will simply say that she is WAY behind. But we all knew that. In fact, she is behind in every single area, even cognition (she is below the 10th percentile on all except cognition). HOWEVER, the way that cognition is tested relies, in part, on motor skills. If she can't point to an object, she can't demonstrate she knows it. So, the team thinks that her cognitive skills and social skills are ok, but the items that she didn't do well on were items that required some sort of physical response.
So, I am faxing the report to the pediatrician and the neurologist tomorrow. Tracey will call the neurologist once he gets the films from the MRI and discuss the evaluation. I think she will push for another test - some sort of plan of action. In the meantime I send out the appeal tomorrow and will begin work on a timeline of all the testing (and results) and doctor appts Eve has had. Something to bring with us to all Dr appts to show what we have had done and when.
Also, we started video taping Eve (per Tina's request) as a precursor to a consult at CHOP. Just to make sure we don't make a trip to the CP clinic unnecessarily. Sooo... that's it for now.
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