The purpose of this blog is to keep everyone updated on our family and the management of Eve's mitochondrial disease.
Sunday, January 13, 2008
still recovering
It's been a tough couple of days for Eve. She really made Grammie and PaPa work hard when they were here. And she rewarded them by throwing up in their truck. And then she threw up the next morning, too. I think it was the Tylenol with codeine that did it (mixed in with some car sickness). She is doing much better. She's been on Motrin since Friday afternoon and seems to be a bit less cranky. She also had a few car rides yesterday sans any vomiting.
The reason for some of the car rides yesterday is that Eve got another urinary track infection. She missed her daily antibiotic the day of the surgery, and she threw up a 1-2 hours after her Friday dose. Fortunately, her pediatrician (Dr. Setia) had office hours on Saturday morning. We took her in and filled him in on the week's events. I told him that she had been catheterized during surgery, but thought that shouldn't cause an infections (right???). He said that if you or I were catheterized and bacteria was introduced, 8 times out of 10 we would flush it out with the urine. But he suspects that Eve is unable to fully empty her bladder and thus wouldn't be able to flush out the bacteria. He also thinks that missing one dose of the antibiotic wouldn't result in a UTI, and more likely that antibiotic isn't working. So.....he sent us to the hospital to have a urine analysis by catheter. Because she isn't potty trained, they had to use a cath. Poor poor kid. After much crying, she survived. Dr. Setia gave us a Rx for a different antibiotic and told us to start her on it. He will call when he gets the results of the urinalysis. Fortunately, I will see him on Thursday anyway for her scheduled appt to have him look at her incision.
So, it's been a crazy kind of week. Eve goes back to school tomorrow and I definitely think she is up for it.
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