I got a voicemail from Dr. Shoffner's office yesterday. They received the pre-approval from insurance and will begin the mtDNA sequencing! Yay. So, I assume that we can now start the 12 week countdown.
In the meantime I am working on getting together all of the information, forms, and signatures for Eve's Katie Beckett Waiver renewal. Apparently you need to reapply every year. It's an exhausting process in more ways than one. You have to dig out all your EOB's to figure out medical costs (they want a monthly breakdown for things like Dr visits, meds, equipment, therapy, etc). You have to get notes/letters from her specialists. You have to get the pediatrician to sign your paperwork. You have to print out bank statements. And it's emotionally hard, too. I am faced with the reality of her disease. Yesterday I was filling out one of the (many) forms and got stuck on prognosis. What do I put? death? So I left it blank. I'll ask Dr. Setia today (we're going for Eve's flu shot). I'm nervous with the current economy that we might get denied this waiver. It's been a lifesaver in the past year. I'll just try my best.
2 comments:
Bloody heck - you need a secretary just for the paperwork! Now if you had the ugly couch, you'd be all set, right?
Don't make me cry!! :) Yes, an ugly couch is all I need. And some Bovril. Love you!
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