The purpose of this blog is to keep everyone updated on our family and the management of Eve's mitochondrial disease.
Monday, November 24, 2008
glamour girl
All is well in Georgia. Jim never did get sick and I got much better after Monday. I'm gathering data for our visit to the GI doc on Wednesday. I'm curious about what he'll say and what tests he might order.
At the end of this past week I was traveling for business, and spent LOTS of time in the airport. I've realized that seeing typical little kids is very difficult for me. They are so precious and I just want to hug their little bodies, but it makes me so sad because it is a huge reminder of what Eve is (and we are) missing out on. Jim said something sweet when I told him this. He said that one day we will have a typical child and then we will get to experience both - being the parents of a SN child and the parents of a typical child. I guess I'm just ready to experience what most parents do.
Recently I joined facebook (under my maiden name because I don't want students to find me). I'm not sure how I feel about it. This whole "friending" thing is weird. The reason that I bring this up is because I've had some quick messages with people I haven't seen or spoken to in 10 years and they ask me how things are. How do I answer that? You can't just come out with, "Well, I am a professor now. Oh, and my daughter is terminally ill." Yet, it's such a big part of my life, that it seems to be worth mentioning soon. I don't really know what to say. I'm thinking of just posting a picture of Eve in her wheelchair so people will know some thing's up. But, then I wonder if no one will mention anything because they're afraid to. Oh well. Happy Thanksgiving.
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1 comment:
Eve's doing a GREAT Scarlett Johannsen look there. You know, the only expression she has when acting?
Happy Thanksgiving you guys!
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