The purpose of this blog is to keep everyone updated on our family and the management of Eve's mitochondrial disease.
Monday, March 23, 2009
Eve is in the hospital
Although Eve's cough showed signs of improvement, she kept having these choking coughing fits in which she would struggle for breath. It is pretty scary. So we took her to the on call doc yesterday (Sunday) morning. After explaining her symptoms and her mito, he suspected that her illness caused a regression in muscle functioning leaving her muscles not strong enough to clear secretions. So he called Eve's neurologist to consult. Dr. K (neuro) seriously doubter this was a muscle thing and thought it might be more whooping cough. Long story short, the on call doc sent us to the hospital for monitoring and testing. They did a chest xray (clear), blood tests, and a nasal swab. They hooked her up to machines to measure heart rate and breathing. The culture for whooping cough won't come back for 4-5 days. She had a tough night last night. Didn't get to sleep until 10pm and woke up every hour or so having a coughing spell. After 3pm, she got better. Her coughs weren't so scary, and although they woke her up, she wasn't panicked for breath. I'm at work now (Jim's with Eve) and just got off the phone with Eve's regular pediatrician. Apparently, she tested positive for a mycoplasma infection. So she's basically quarantined to her room. Dr. Setia says he would be shocked if she had whooping cough. He actually treated her with an antibiotic that would have treated this infection on the 9th. So she got the full 10 days of her antibiotic dose. He said that the antibodies show up for some time and that's why she's still testing positively. He'll come back to the hospital today to talk to us. I'll ask him about school/daycare then. If she is doing better (although I just talked to Jim and he said she had the worst fit yet - very scary), she might go home late afternoon. I am not getting my hopes up. Ug. I am exhausted.
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1 comment:
Ooo! Just feel so dearly for you all. Scary stuff - you're in our thoughts - we're sending boat loads of hugs and well wishes and hopes for less scariness, less pain, less tiredness, and definitely less stress. MWAH!!! The Higgins'
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