I forgot to mention that last week Eve had appointments for a wheelchair clinic and to get fitted for new AFOs (ankle foot orthotics). She is still incredibly fearful of medical settings. The wheelchair clinic was not too bad, though she did freak out when they measured her for the chair. We're ordering a Zippy Iris with lots of accessories (tray, stroller handlebar, etc.). It's a really nice chair with lots of room for growth. With a click it will tilt back while she's in it so that it can relieve pressure on her rear and generally be more comfortable for her. It will take a while to get through insurance. The DME rep said that maybe in January we'd get the new chair. The positioning chair that we ordered from Eve's kiddie pool is supposed to arrive on Wednesday. I will post lots of pictures!
The appointment for the AFOs was a NIGHTMARE. She screamed bloody murder the entire time. She really was scared and didn't calm down until her coat was on and we were ready to leave. The orthotist simply did a casting of her feet/ankles/calves. Simple and painless and I held her and comforted her the whole time. But you would have thought he threatened to rip her legs off and beat her with them. We go back in a few weeks to pick them up. I think Jim might be taking Eve for that appointment.
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