Yesterday we drove to Boston to meet Eve's new Mito doc. Her name is Dr. J and she is very young (younger than me, I think!). The specialty of this clinic is metabolics and genetics (as opposed to Dr. K in Atlanta who was neurology and the other Dr. K who was genetics). The Dr. spent a lot of time with us, and most of the visit was us giving background information on Eve. They measured her height (roughly 33 1/2 inches - she was screaming) and weight (30lbs 8 oz), and took a urine and blood sample. It was not very exciting nor impressive. What I mean by that is that we didn't learn anything, but rather established a relationship and baseline of sorts. The doctor was nice, but hesitant. I think she was afraid to upset Eve. She's going to write up a detailed letter about our visit and send it out to us and the other doctors caring for Eve. She wants to check the levels of B2 in Eve's mito cocktail with Dr. Korson (also at this clinic). He is more experienced I believe. She's also recommending a vision, hearing, and heart exam in the next year.
It was a long, but necessary, day. Eve was well behaved for 90% of it and even slept for portions of the car ride. We go back to this doctor in 6 months. Next up is Neuro and GI in March.
No comments:
Post a Comment