big belly

All continues to be well.
Here are two pictures of Seamus and his gigantic Buddha belly:

I'm tempted to post a picture of me when I was pregnant side by side to see who was bigger.  I think he's carrying a banana baby.  He ate a whole banana and a whole waffle this morning. 

Last week I had to take him to the doctor because he had a fever.  The nurse had him stand on the big kid scale to get weighed.  In the exam room, I started to cry as I explained that this was the first time a child of mine ever stood up to be weighed.  It was bittersweet. 

His favorite words are: Kitty, Doggy, Katie (his daycare provider), and Daddy.  He can say Mama, but it's not in heavy rotation.  He has learned to sign "more" and "horse".  He also likes to crawl on the floor and say, "Woof.  Woof."  He loves to give hugs and will frequently run to you just to hug you.

Eve is doing well.  We are still trying to get her formula sorted out.  We switched to the elemental formula, but it didn't have fiber and it messed up her BM schedule.  So, while we are waiting for the elemental formula with fiber to be approved by insurance she is back on the old formula and her poops are back to normal.  Her pump broke this morning, but within three hours the pharmacy had a replacement delivered.  Crisis averted.

I'm wondering if Eve will lose her last tooth (the other top front) by Christmas. Then I can sing "All I want for Christmas.." to her. 

trip to Boston Children's

Yesterday we made the trip to Boston Children's Hospital for Eve's Urodynamic study.  She was so well behaved and remained calm during the exam.  The nurses even told her she was the best dressed patient of the day.  :) 

The results showed normal functioning. There is no kidney reflux and her bladder fills and empties normally.  There was a little bit of over activity right before voiding, but the urologist was not concerned at all.  So, this is great news and we can cross urology off the list of things to worry about.  Of course, that doesn't explain the pain episodes (but it does tell us what it is not).  Speaking of, Eve had an episode at school on Tuesday morning.  It passed, but then she had another episode at home with the PCA.  Her legs were shaking and we couldn't get her to stop.  Although she wasn't moaning by the time I got home (after the PCA called me), she was very uncomfortable.  I gave her a dose of morphine and she immediately relaxed. 

morphine

I had to give Eve some morphine today.  Jim was at work and she started whining while I was feeding Seamus lunch.  I couldn't get a good answer out of her if she just didn't want to be in the kitchen She's been asking to watch TV when we eat lately.  She gags a lot while we eat.  I'm not sure if the food is making her nauseous.  Anyhow, at first I  couldn't tell if she was in pain.  She was clearly upset.  But then she started ramping up and it looked much more like her night episodes.  She started moaning.    I asked her if she needed medicine and she said yes. So I got the morphine out and she clearly didn't like the way it tasted, but in about 90 seconds she was totally relaxed and comfortable.  It was such a small dose, but it did the trick.  I put her down for her nap after that.  I checked on her to make sure her breathing was steady (it was) and she opened her eyes right away when I went in her room.  The rest of the afternoon went fine.  It was scary to have to give it to her, and it's upsetting to see her in pain.  It's been a while (maybe 7 weeks?) since she's had a pain episode, so we had  nice stretch there.