It's been a week since our ER visit and Eve is totally back to normal. I have since spoken with her pediatrician, neurologist, and physiatrist. We are going to keep her at the reduced rate of Baclofen for a few days and then slowly increase again. Both the neuro and physiatrist (Dr. N) felt that while it could have been a medication thing, the timing was a little weird for it to be that. They didn't rule it out, but didn't want to jump to an easy conclusion either. Dr. N asked if they checked her for pneumonia (they did not). She was surprised by this, as Eve was there for respiratory issues. Because of Eve's daily gagging, aspiration is a concern. Next time I will be sure to mention this so that chest xray is done.
Anyhow, she is doing great and we are back to normal at our house.
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