So, a nurse from the Neurologist's office called today. She talked with the Dr this morning and he does want Eve to have the spine MRI under general anesthesia. She couldn't tell me why, however. So I asked if we could have it done in Athens, and she said he can't order it for Athens. I asked if the pediatrician could order it. She said he would need to see the films. I reminded her that he was able to have the films sent to him from the first MRI that was done in Athens. I also asked if we could have other testing while we waited. She said she would have to ask him. So I told her to ask him if he would be horrified at the thought of a spinal MRI done in Athens. Supposedly she will get back to me. Not the friendliest of women. Then we had Eve's pediatrician (Dr Setia) appt this afternoon. Turns out she has a sinus infection and needs an antibiotic (Amoxicilin). I asked about the antibiotic she's already on (Sulfatrim) for the kidney reflux. He explained that the Sulfatrim works on ecoli and there is no ecoli in her nasal area (thank God, right?). But he did say that the amoxicilin should cover for the sulfatrim for a few says, so I can stop that in the meantime. I guess it's a broader bacteria killer. I also filled Dr. Setia in with the latest from the Neurologist (Krawiecki). He said he would be happy to order an MRI, but he is just not sure if Athens does them under general anesthesia. He is going to call and check. Also, he reminded me that metabolic testing was done (in ohio) and came back normal. He said that what Krawiecki is doing is looking for things that are treatable. Because if it's not treatable, it doesn't matter when we figure out what she has. Except for my peace of mind, I reminded him. But I get it. Apparently the spinal MRI is looking for something treatable, so it is frustrating that it will take so long to have it done. I feel that it is a fine line between being an advocate for your child and a pain in the ass. I am caught between a squeeky wheel gets grease and catching flies with honey ...and being a big pain in the ass. I don't want to cross that line unless i have to. I want the office staff and nurses to want to help. Anyway, here are the pictures of Eve's AFO's and some pictures of Jim and I with her. You'll notice that both Jim and I got our hair cut.
Actually, it looks like we got the same cut. :)
So, a nurse from the Neurologist's office called today. She talked with the Dr this morning and he does want Eve to have the spine MRI under general anesthesia. She couldn't tell me why, however. So I asked if we could have it done in Athens, and she said he can't order it for Athens. I asked if the pediatrician could order it. She said he would need to see the films. I reminded her that he was able to have the films sent to him from the first MRI that was done in Athens. I also asked if we could have other testing while we waited. She said she would have to ask him. So I told her to ask him if he would be horrified at the thought of a spinal MRI done in Athens. Supposedly she will get back to me. Not the friendliest of women. Then we had Eve's pediatrician (Dr Setia) appt this afternoon. Turns out she has a sinus infection and needs an antibiotic (Amoxicilin). I asked about the antibiotic she's already on (Sulfatrim) for the kidney reflux. He explained that the Sulfatrim works on ecoli and there is no ecoli in her nasal area (thank God, right?). But he did say that the amoxicilin should cover for the sulfatrim for a few says, so I can stop that in the meantime. I guess it's a broader bacteria killer. I also filled Dr. Setia in with the latest from the Neurologist (Krawiecki). He said he would be happy to order an MRI, but he is just not sure if Athens does them under general anesthesia. He is going to call and check. Also, he reminded me that metabolic testing was done (in ohio) and came back normal. He said that what Krawiecki is doing is looking for things that are treatable. Because if it's not treatable, it doesn't matter when we figure out what she has. Except for my peace of mind, I reminded him. But I get it. Apparently the spinal MRI is looking for something treatable, so it is frustrating that it will take so long to have it done. I feel that it is a fine line between being an advocate for your child and a pain in the ass. I am caught between a squeeky wheel gets grease and catching flies with honey ...and being a big pain in the ass. I don't want to cross that line unless i have to. I want the office staff and nurses to want to help. Anyway, here are the pictures of Eve's AFO's and some pictures of Jim and I with her. You'll notice that both Jim and I got our hair cut. 
Actually, it looks like we got the same cut. :)
2 comments:
Sharon, in my opinion, you as a mother are not perceived as a PIA when you are advocating for your child. Thank you Jimmy for the haircut!!!
Oh, Sharon I love the haircut! It looks great on you.
Your's is nice too Jim.
I understand not wanting to be a PITA too...but I'm sure the staff have dealt with much worse over much less.
Keep being persistent and questioning, just do it with a big smile on your face. And I'm sure a little chocolate or a dozen donuts wouldn't hurt ;)
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