moving forward?

Well, the neurologist said that it's okay to get the spinal MRI done in Athens. I am going to call the pediatrician this morning. I hope they do it at Athens Regional because even if their waiting list is 3 months long, that's a heck of a lot closer than Atlanta. I also just got off the phone with the social worker from the neurologist's office. I don't have much hope that our Deeming waiver appeal will be successful. Oh well. She thinks that one of the hindrances is our lack of diagnosis. You think???? So, I am going to continue to work on that.

Speaking of...I talked with a friend (Tina) who works at Children's Hospital of Philadelphia (CHOP) and I feel like I have been stumbling around in a dark room and she came and showed me the door. She gave some great suggestions (e.g., seeing an orthopedic doctor instead of a neurologist - especially if this is CP or even if it is something to do with the spinal cord) and is going to help us get an appt at the CP clinic at CHOP. Apparently, the clinic would allow us to see several members of the team in one afternoon. If they don't feel it is CP, then they can make appropriate referrals. Tina really validated my feeling that I need professionals who are going to be motivated to help us find an diagnosis and a plan of action. I really don't feel that this is a major priority for the neurologist. I am very tired of the wait and see approach.