But, we are both doing much better. On Monday, we went to Atlanta to give those 3 tubes of blood to Dr. Shoffner's office and then we went to see the Neurologist, Dr. Krawiecki. Dr. K didn't have much to say (this appt was booked 6 months ago). He scheduled us for another appt at the end of April to go over the results of the biopsy (they should be in by then). I got the impression that he thinks nothing will come of it and that we will be left with "diagnosis unknown" and can basically assume we are dealing with CP. He really does think that because Eve has not regressed further (even though she has not really progressed either), the ground she lost was not a true regression - perhaps she got too heavy to continue crawling and balancing.
On Friday, the mobility specialist came over to measure Eve and talk about equipment. Thanks to the great work of the people at CHOP, he agreed with all of their recommendations. We are going to order a stander, a gait trainer, and a bath chair. They are all separate categories of equipment, so insurance should agree to pay for them. We will also need to order some sort of wheelchair for her as well for when she starts school in August. We can't expect the teacher to carry her around all day like we do. It should take about 3 months to get all the equipment in. It has to go through insurance, and get signed off by the doctor, etc. I'll ask Jim about the manufacturers - I bet there's a link I can post on here so you can see what pieces of equipment I am talking about. Hope you are having a good weekend - Eve is!
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