Well, the week is half over. Whew. Monday the swallow study at the local hospital went well. It was really really cool to watch. They strapped Eve into a foam chair (I wish I brought my camera!!) and fed her the food and drink that I brought that had been mixed with Barium powder. As she ate/drank they Xrayed her. It was sooooo cool to watch her Xray as she chewed and swallowed. They video taped the test and showed it to me again when it was over. Here's what the pathologist said:
Eve didn't aspirate at that time (but that doesn't mean she never does). Eve doesn't chew as much as she should (which makes it more dangerous if she does aspirate because that is a larger chunk going down the wrong tube). Eve has trouble using her tongue to move food around so we should present crunchy food on the side of her mouth, rather than have her bite it with her front teeth.
Eve uses two swallows to clear her palate.
Soooo....what does this mean? She's not the best eater in terms of technique. But so far it's not terribly problematic. we are to touch the sides of Eve's tongue when brushing her teeth to stimulate it to move side to side. Cold and flavorful foods will help Eve be aware of them in her mouth (hypotonia can be associated with decreased sensitivity).
Yesterday we went to the Orthotics place. Jason casted Eve's feet and legs (almost up to the knee) to make molds for her new orthotics. We are going to get similar ones to her current AFO's, but these come up over the top of the foot more. They should take about 2 weeks to come in.
I found out the other day that Eve laughs at daycare when the other kids get in trouble (especially Tucker). I'm not sure if that's funny or not! I don't want her to be a brat, but I like that she's happy. :)
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