update

The rest of our weekend went well. We took Eve swimming and she loved it. LOVED it. It was fun for all of us - especially because we broke 100 degrees on Sunday. So I would say she is feeling better. I took her to the pediatrician on Monday for her followup. The urine culture came back negative for infection. But he was pretty concerned about the straw thing. He told me to call him in 2 days if it wasn't better and he'll call the neurologist. Last night Eve woke up in the middle of the night crying. But it sounded like she was having trouble breathing through her nose. Fearing that she was pressed up against her bed rail, I raced in to get her. Nothing was obstructing her breathing. She didn't have any mucous, and I couldn't figure out why she was so upset. I picked her up and she was doing this really weird rhythmic jerking of her body. Kind of like her whole body had hiccups. It happened about every second or two and lasted for less than 5 minutes. I got her settled back in bed and she went back to sleep and slept through the night. When I told Tracey about it, she suggested I call Dr. S because that might have been a seizure. He called me back this afternoon and asked a bunch of questions. He told me he wants to do an EEG and to call Dr. K (Neuro) and see if he wants it done in Atlanta or locally. I called and left a message and then spoke to a nurse. She said that if an EEG is done, it would be done in Atlanta. She's going to check with Dr. K and get back to me tomorrow. In the meantime we are going to stay on top of things as far as the liquid intake goes. We're going to try to get her to drink more viscous liquids through the straw to see if that helps her work it better. The idea is that if the liquid has more viscosity, then Eve will be more aware of it in her mouth and not let it dribble out or spit it out.