The purpose of this blog is to keep everyone updated on our family and the management of Eve's mitochondrial disease.
Sunday, May 10, 2009
hospital again
Just a quick update. Eve was back in the hospital this weekend. Friday we had a scheduled appointment at CHOA Scottish Rite to have her g-tube replaced with a button. That way we can attach a tube when needed and there isn't a long tube dangling that can get caught when not in use. Anyhow, we were shocked because they didn't sedate her or give her any anesthetic. They just popped that tube out and inserted the button. Of course, she screamed bloody murder. Well, the rest of the day she was super sensitive and guarding her stomach. We went home and she cried nearly the whole way. She didn't really want to eat or drink. That night she was up every 30 minutes or so. We had her on constant doses of motrin. Well she got a fever in the middle of the night. When we brought her to Dr. Setia on Saturday morning, she had a temp of 103.9. Highest it's ever been. He examined her and called the GI doc on call. Then he sent us to Athens Regional. They used contrast dye and an xray to be sure the button was placed correctly (in the stomach instead of between the stomach and abdominal wall). Fortunately it was, so they started treating her for infection there (rather than transporting her to Scottish Rite). So, they've got her on heavy duty antibiotics. Sometime last night her fever broke (maybe around midnight). This morning she actually ate a few bites of grits and jello and was in a pretty good mood. Dr. Setia stopped by and said that they'll take out the IV and if she continues to have a normal temperature, she might be able to go home tonight. :) Happy Mother's Day! Feel free to call our cell phones. We won't answer if we can't talk.
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2 comments:
So sorry to hear about Eve! Yeah, happy mother's day. I hope she's feeling better soon.
Poor baby! Good news that the button is in, bad news that it was such a process to get it. I hope she continues to feel better.
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