Wednesday, May 6, 2009

Over due post

Things have been so busy lately, so I am going to bombard you with pictures. Here's a shot from my birthday. Both Kirby and Josie were super excited that I was turning 33. They even wore party hats!

Eve was super excited about the cake. Some of it made it in her mouth. But she had fun trying.

Speaking of having fun...Here's her walrus imitation.

By the way, you'll notice that Eve got a haircut. We got tired of her wild-woman hair. Combing out dreadlocks is not too fun. Her curls really show up now that her hair is shorter.

I had gone strawberry picking last week (amazing how fast we went through a gallon of berries). Eve helped me make a strawberry pie. Here she is helping with the crust.

She also helped me mash up the strawberries and measure and mix the filling. She seemed to like it so much we gave her some measuring cups, spoons, flour and water. She was "cooking" and had a blast. She cried when it was time to clean -up. She had so much fun "cooking" that a shower was necessary.


Here are some more shots of that haircut.

Oh, Josie's boyfriend was calling here. Jim gets a kick out of telling Josie her boyfriend is calling to ask her out (or break up with her). Eve laughs every time.



On to other news. We went to the neurologist on Monday. I was slightly disappointed because I really hoped that he'd fix the whole Shoffner thing. Instead, he will call but expects to hear the same thing we've heard. Now I almost fear it will take even longer. Dr. K kept saying things like getting Eve's new docs in touch with Shoffner. Whaaaat? I really hope he doesn't think that this stuff won't be done by the time we move this summer. *deep breath* I'll call next week to see what I can find out. I am nervous that my insurance will end before he decides to bill them. Ug. *deeper breath* Anyhow, Dr. K looked at Eve and made her smile. He's going to find us a pediatric neuroligist in Albany and we'll see a mito doc in Boston. He also is taking Eve off the CoQ10 to see if she shows any declines. If not, we can keep her off. It hasn't improved anything, so it might not be doing anything. After that we go off the levocarnatine. This will be a help because the CoQ10 is so expensive.

3 comments:

Eve said...

Cute 'do!

Trina said...

Perhaps when you call Shoffner's office, you should mention the fact that you will be moving, that your current insurance will be ending, so he really need to provide you the results so that there are no issues with payment by the insurance company. Nothing scares a doctor like the fear he won't be paid. Just a thought...

Sharon said...

T- I like that thought. I'll do it next week!