Saturday, March 23, 2013
Tuesday, March 12, 2013
Eve finally shook the remnants of the cold about a week ago. After being put on Amoxicillin, she took a turn for the worse. Her pediatrician switched her to a broader spectrum antibiotic and we gave her that for 10 days. She finished on Friday and has no more cough or runny nose. However, she did get diarrhea. So, to combat that we backed off the miralax and ended up constipating her. So, we are back on Miralax and trying to find the balance again (and almost there). Speaking of that issue, I swear that the child has a connection between her butt and doctors' offices. Without fail, she manages to poop en route to every doctor's office every single time. So we get there, and I have to ask for an exam room to change her. We had two doctors' appointments this week and I wised up. I thought to ask the nurses for some air freshener, because girl can drop bombs.
So, about those appointments:
Yesterday she had her neurology appointment. We upped one of her meds, but nothing has really changed since he saw her in the hospital. She has lost all of her words for the most part. She really doesn't even say "Ah" for yes anymore. I have resorted to asking her to look at her preferred options rather than saying yes to something. I mentioned how she no longer cries, but has retained her laughter. She is pretty apathetic about some things, but still manages to laugh hysterically at her brother or father. She still has her sense of humor.
Today we went for the GI followup. That went well, too. She weighs 45lbs!!! She has put on 9 pounds in the last 6 months. Consequently, the GI said to back off her feeds a little. So, I'll keep her on 20 hours a day, but reduce the rate a bit. All else is going well. He said something to the effect of not rocking the boat.
Here is a picture of my folks and the kids. Jim is on a trip this week (more on that later), and they came up to help out. Seamus is keeping us all entertained.
So, about those appointments:
Yesterday she had her neurology appointment. We upped one of her meds, but nothing has really changed since he saw her in the hospital. She has lost all of her words for the most part. She really doesn't even say "Ah" for yes anymore. I have resorted to asking her to look at her preferred options rather than saying yes to something. I mentioned how she no longer cries, but has retained her laughter. She is pretty apathetic about some things, but still manages to laugh hysterically at her brother or father. She still has her sense of humor.
Today we went for the GI followup. That went well, too. She weighs 45lbs!!! She has put on 9 pounds in the last 6 months. Consequently, the GI said to back off her feeds a little. So, I'll keep her on 20 hours a day, but reduce the rate a bit. All else is going well. He said something to the effect of not rocking the boat.
Here is a picture of my folks and the kids. Jim is on a trip this week (more on that later), and they came up to help out. Seamus is keeping us all entertained.
Friday, March 1, 2013
Monday, February 25, 2013
Saturday, February 23, 2013
The antibiotics seem to be working. Eve is doing much better. Thursday afternoon and night were still rough. Lots of coughing and gagging, and she threw up in bed shortly after bedtime. But by the time I went to bed she had settled down and only gagged a few times the rest of the night.
Yesterday was much better. She was still coughing, but not nearly as much. She was also gagging a lot less. Last night she settled down to bed right away and only made noises for about 5 minutes. I didn't hear her coughing until about 6am. She's not coughing too much this morning and hasn't gagged at all. Her nose is still running and she sounds more stuffy, but I am so relieved at the progress she's making.
Yesterday was much better. She was still coughing, but not nearly as much. She was also gagging a lot less. Last night she settled down to bed right away and only made noises for about 5 minutes. I didn't hear her coughing until about 6am. She's not coughing too much this morning and hasn't gagged at all. Her nose is still running and she sounds more stuffy, but I am so relieved at the progress she's making.
Thursday, February 21, 2013
lullaby and antibiotics
Every night for 7 years, we have been singing the same song to Eve at bedtime. Here is the original version:
http://youtu.be/56SOgdbljeU
We replace "baby" with "Evie." For 18 months, Seamus has heard it, too. We use his name for him.
It's our own special routine.
In other news, Eve's cold seems to have gotten worse again. Last night was particularly rough. She was coughing continuously and eventually vomited twice in trying to clear her airway. A bunch of clear liquid came out - which was either excessive saliva or the 2oz water we mixed with her miralax 6 hours earlier. So, we changed her sheets and pj's (twice) and eventually, she rested comfortably. Me? Not so much. This morning I got her out of bed and as I was putting her in her wheelchair she vomited a handful of mucous. Green and thick and enough to fill my hand. Gross and TMI, sorry.
Anyhow, I was positively vibrating with stress and worry. I kept telling myself some advice that my friend, Ellen, gave me: Don't borrow trouble. I repeated it like a mantra. Stop worrying about things that might be and just deal with the here and now. I can't even begin to tell you where my mind was trying to go.
I decided to stay home with her today and cancel my classes and the babysitter (this is Eve's school break). I emailed her pediatrician, who called me. Dr. A told me that because Eve has been sick for nearly a month, it is time to try her on Amoxicillan. We went off it when Eve was at Baystate because they told us this was viral. However, because it has been so long, there is a good chance of bacterial involvement by now. I started to cry because so often I feel very helpless with Eve's symptoms. It was so nice to be given something to try that will hopefully make her feel better. So, I'll pick up the Rx by lunch and get two doses in her today. Hopefully by the end of the weekend she will be feeling better in time for school next week. I've also given her a decongestant and some Tylenol (in case of sore throat from post nasal drip or headache). She seems to be doing better now than first thing this morning. I'm hoping a nap also helps her feel better. I'm planning on napping, too. Or at least trying to.
http://youtu.be/56SOgdbljeU
We replace "baby" with "Evie." For 18 months, Seamus has heard it, too. We use his name for him.
It's our own special routine.
In other news, Eve's cold seems to have gotten worse again. Last night was particularly rough. She was coughing continuously and eventually vomited twice in trying to clear her airway. A bunch of clear liquid came out - which was either excessive saliva or the 2oz water we mixed with her miralax 6 hours earlier. So, we changed her sheets and pj's (twice) and eventually, she rested comfortably. Me? Not so much. This morning I got her out of bed and as I was putting her in her wheelchair she vomited a handful of mucous. Green and thick and enough to fill my hand. Gross and TMI, sorry.
Anyhow, I was positively vibrating with stress and worry. I kept telling myself some advice that my friend, Ellen, gave me: Don't borrow trouble. I repeated it like a mantra. Stop worrying about things that might be and just deal with the here and now. I can't even begin to tell you where my mind was trying to go.
I decided to stay home with her today and cancel my classes and the babysitter (this is Eve's school break). I emailed her pediatrician, who called me. Dr. A told me that because Eve has been sick for nearly a month, it is time to try her on Amoxicillan. We went off it when Eve was at Baystate because they told us this was viral. However, because it has been so long, there is a good chance of bacterial involvement by now. I started to cry because so often I feel very helpless with Eve's symptoms. It was so nice to be given something to try that will hopefully make her feel better. So, I'll pick up the Rx by lunch and get two doses in her today. Hopefully by the end of the weekend she will be feeling better in time for school next week. I've also given her a decongestant and some Tylenol (in case of sore throat from post nasal drip or headache). She seems to be doing better now than first thing this morning. I'm hoping a nap also helps her feel better. I'm planning on napping, too. Or at least trying to.
Wednesday, February 20, 2013
Potty pooper
Today Seamus pooped on the potty at daycare. I'm sure it was a total fluke, but I think it's wonderful for him to get positive reinforcement and start to connect the potty with what it is there for. I just can't even imagine having a child that can use a toilet. I've been changing diapers for 7 years - with double diaper duty for the last year and a half. It will be wonderful when Seamus is potty trained in the future.
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