Doing great

So Eve is doing great. That's my non-professional opinion. I'd have a professional opinion to report...if I had remembered to take Eve to Dr. Setia for her follow-up appointment. Duh!!!! I totally spaced out and didn't show up. It really really bugs me that I forgot. I know I have a lot on my mind, but come on. I guess because Eve is doing so well, I wasn't focused on her needing to go to the doctor. Here are two shots of her in the hospital.


Poor little thing was like a rag doll. Oh, and here is what her button looks like now. I took this picture tonight after her bath. You pull up the flap on the top and stick in the 'pig tail' tube. Then you squirt the liquid (medicine, formula, whatever) into that tube. The little valve on the side is to inflate/deflate the balloon that keeps the button from falling out.

Dr. K called today. He spoke with Dr. Shoffner. The lab has finished the sequencing (!) and now we just have to wait for him to write it up and send it out (7-10 days). I am super excited about this. Finally, a light at the end of the long-ass tunnel. I feel a great sense of relief that in about 2 weeks we should have more information on her disease.