4 month well visit and wheelchair

There are many things I need to write about. But, I'll start with the best: last night Seamus slept through the night! He slept from 7pm to 6:15am! What a wonderful sign of nights to come.

He had his first ear infection almost two weeks ago, but we got that taken care of ASAP. Amazing what a few doses of antibiotics can do for a kid's comfort. We also had Seamus's 4 month well visit. He's 25.5 inches long (50th) and 13lbs 7oz (10th). So, we're increasing the amount of milk in his bottles during daycare. This slight drop on his growth curve may be because he was sick two days before the well visit. Seamus has also been eating cereal and fruit/veggies twice a day now. So far, little man has had apples, peas, and bananas. He loves his food and has not turned his nose up at anything - not even his medicine. He laps that up like a little kitty and cries when it's finished.

Eve is doing well. She just had her wheelchair adjusted. The seat is wider to accommodate the growth she's had. We still need to work out the kinks (a new tray needs to be ordered, the headrest needs to be adjusted, the tilt mechanism needs to be fixed, etc.) but we're working on it. Her next appointment with the mito doc is June (we are skipping the December visit). We also have an appt with the Physiatrist in June, which is good because she has been scissoring her legs a lot. It's been hard to changer her diapers. She's also been having episodes when she gets totally freaked out in the bathtub - so scared of falling that she screams and cries. Nothing about the tub or bath chair has changed. I hug her and hold her while she's in the tub and it doesn't help. I'm not sure what's going on. There are several possibilities. She could be getting sick and her balance is off. This could be a cognitive decline. Who knows. Other than bath time (and it's not every time, btw), Eve is super happy. She loves her brother and helps put him to bed every night.