Eve had a rough night last night. We had to go into her room 10 times throughout the night. She was crying out in what sounded like pain. When we'd go into her room, she would be so tight with her one leg jacked up. We couldn't straighten her leg, it was locked in a bent position. We gave her motrin, but it didn't make a difference. We tried everything: holding her and rocking her until she relaxed, talking sternly, comforting, you name it. I even laid in bed next to her. She wouldn't cry when we were in the room. After she relaxed, we could leave the room, but 5-60 minutes later she would be crying again. She was pretty hot yesterday and I don't think she got enough to drink (I forgot her second serving of water through her g-tube), so maybe she was dehydrated. Jim also wondered if she was scared. He took her to a Chinese Festival at the Clark yesterday and said that the street performers were pretty scary and she did NOT like them. We finally gave up at 4am and Jim slept in her bed with her. She never made a sound after that. I actually had to wake her up this morning. We will see how tonight goes. It's cooler and I will not forget her second tube water (in addition to what she usually takes by mouth).
Having a non-verbal child in distress may be one of the most frustrating things on the planet. I have never felt so helpless.
1 comment:
Big hugs to you. We totally get it. Celia has been waking from 3-7 am and we have no idea why. I commiserate with the feelings of helplessness. Hopefully, you will all get a nap today and a restful nights sleep from here on out.
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