I keep meaning to post pictures, but the time slips away from me. 

Eve went to the GI last week for a follow-up.  She has put on 3lbs since her hospital stay!  However, she is still retching daily.  He wanted her to have another series of x-rays (which were normal) and he tried her on a new medicine to coat her stomach in case it is the tube from g-j that is irritating her. 
He said to give it about 3 days and then touch base with him.  In the meantime, Eve vomited at school on Friday and spent much of Sunday retching and gagging.  I actually called the on-call GI because I was so worried.  He called in a new Rx that seemed to help a bit.  This morning she gagged a bit and seemed to have a rough day at school.  Some possible pain issues/discomfort/more gagging and retching/and serious zoning out. 

I was able to talk to the GI today.  He said that obviously the first med from last week is not working, so we discontinue that.  He wants her to have a g-j tube study tomorrow (they insert dye in the tube to make sure it's working correctly).  He said that in his heart of hearts he believes this won't show anything.  But it needs to be done prior to the next step he is recommending - surgery to place a j-tube.  So, the g-tube will go back to being a mic-key button (held in place by a small balloon) so we can give her meds through her stomach.  The j-tube will now be surgically placed right into her intestines (rather than have a tube snake through her stomach).  We are also going for a surgery consult tomorrow. 

I do not believe that is the problem, but I am totally willing to explore all options.  While I do not look forward to subjecting our child to surgery, there is a possibility it could help her.  I'd hate to get to a point where I wondered if we did everything we could to make her comfortable.  I don't know where we will go from here if this doesn't work.  I really don't know. 

In the meantime, we are also headed to Shriner's hospital this week to have her hips looked at.  This appointment was made months ago when her hips and legs seemed like her biggest problem.  I can't explain what it's like to have your worry pulled in so many different directions.