small hiccup

A small hiccup in the wonderful holidays was that Eve needed to go to Baystate to have her tube replaced.  It accidentally came out Saturday night (it got caught).  Fortunately, Jim remembered we had a spare mic-key button (her old g-tube) that he inserted to preserve the stoma.  Otherwise, the stoma could begin to close in as little time as an hour.  By inserting the mic-key we avoided surgery to re-open the stoma.  However, the hospital couldn't replace the g-j tube until Monday.  Additionally, it couldn't be done at our local hospital.  So, Jim packed up Eve on Sunday morning and they went to the ER at Baystate for fluids until they replaced the g-j (since without the tube she would get no nutrients or fluids).   They were back home by Monday night.  I'm going to make sure we have another mic-key on hand in case this happens again.  Apparently, Eve was not bothered in the least when it came out (I was still in FL). 

Jim and I were talking last night about Eve and her decline.  She barely says yes or no anymore, but you can still (usually) tell what she wants by her facial expressions, etc.  Jim also mentioned that he thinks she can no longer cry.  I've been saying for a while that I've noticed that she has stopped complaining, but it didn't dawn on me that I can't remember the last time I saw her cry.  Jim said at the hospital, they had to dig around to find a vein for the IV and she didn't cry at all or get upset.  That would have created hysterics a year ago.  Fortunately, she is not without emotion.  She continues to laugh every single day and shows such love for Josie.  She coos at her and at Seamus.  Mostly, she laughs at Seamus.  Especially when he is redirected.  This morning we were laughing at him in his crib.  He was running back and forth and bouncing off the rails.  He looked like a little wrestler in his mini ring.