new gj - again

This week, we went back to Baystate to have Eve's gj button switched out. After talking with the GI last week, we decided to give the Mic-Key one more try.  And we planned to do it with sedation this time.  When Eve and I got to the pediatric procedure department, the nurse was asking me if I wanted to do it without sedation.  I told her no and explained why.  Then she said that maybe they could just loop her out a little but not fully sedate her.  She told me that most kids don't need sedation for this procedure.  This was pretty frustrating for me.  I just said I wanted sedation and explained why.  Stop trying to convince me otherwise.  I told her that I just wanted Eve to be comfortable - whatever level of sedation that would achieve that would be fine.  So she talked to the doc in charge of sedation and he decided to try just looping her out with a little Versed.  It turned out to be fine.  (She never went to sleep and the doc that replaced the tube said it was a good level - they just had to hold her hands down when she startled.)

When we got down to radiology for the procedure, I found out that she wasn't getting the Mic-Key after all.  There was a total miscommunication and they had the older style gj tube for her.  I was super angry at the GI office.  After talking to the GI, I had called the nurse and asked her specifically if we needed to call the hospital to ensure they would have the mic-key ready for Eve.  The nurse ASSURED me that wasn't necessary, they had already ordered it and placed her name on it.  And, dammit, I trusted her.  I just told the hospital staff as long as she had a replacement gj, I was happy.  The procedure went very well.  I talked to the doc and staff at Baystate and they emphatically disagreed with the GI's recommendation of 6 months until the next replacement.  They strongly believe it should be 3 months and said that they are the ones that take them out and see the deterioration.  So I told them I'll split the difference and aim for 4.5 months. 

As I was stewing on the car ride home, I think I figured out the tube/button mix up.  Here's the timeline:
Monday morning I called the GI office and left a message explaining the button had blown valves and needed to be replaced.  The GI nurse (without ever speaking to me) called the hospital and ordered a new mic-key button ASAP.  The guy that manages the equipment at the hospital called me (and I didn't know the nurses has ordered the button) and we talked about tube vs mic-key and I told him I'd just rather have the old style tube.  So I think he canceled the mic-key.  I never heard from the GI office that day.
Tuesday: GI calls me and I talk to the actual doc.  We discuss tube vs button and he suggests that we try the button one more time because if it were functioning properly I'd prefer it.  He also insists he's never heard of valves blowing.  So I call the GI nurse and schedule the switching of the tube.  I ask her if I need to call the hospital and tell them we are now going with the mic-key. She insists that it's been ordered and has Eve's name on it.  (I did not know she had ordered it prior to me talking to John) 
So, I learned an important lesson: Double and triple check.  Don't trust anyone until I get confirmation myself.  It turned out fine and her new tube works great.  So, sometime in October I'll have her tube switched out again.  And I'll order a mic-key and make sure it's in stock.