Eve did well this weekend. No gagging. Perhaps moving the prilosec worked. Yesterday I increased her feeding rate to 52ml/hour.
This morning the school nurse called twice. Eve was retching at school twice. The first time with much effort and she got sweaty and brought up some saliva. The second time wasn't as bad. I had the nurse pause her feedings for 2 hours to give her a break. I put in a call to the GI and am waiting to hear back.
I just don't know what to do. I also am afraid to get comfortable. It seems as though every time I think, "Ok, we are stable. Things are quiet and going well. I can breathe and start to plan for future stuff," she has another episode or setback. And I feel like such an idiot calling the GI office. They are probably so sick of me calling. It's just that vomiting for Eve is not the same as for a regular kid. It could be indicative of a much more serious problem.
Update:
GI called back. He wants to increase the Prilosec to twice a day (morning and night) and see what that does. I am to call on Thursday. I am also to keep giving her the feeds and keep it at the 52ml. I hope this works.
3 comments:
Sharon - Do not feel like an idiot calling the GI doctor's office. It is your job to be an advocate for Eve - you have to be a squeaky wheel to get her what she needs. Who cares if they are sick of you calling. It is their job to be responsive to their patient's needs. If they are sick of you calling, they need to find another type of work. It is extremely important that you find out the information you need and no doctor expects that his patients know everything he does medically. That is why you hire him. Remember the lesson learned about the van - you need to be a squeaky wheel. You are doing a great job, so keep up the good work!
I agree 100%. Be the squeaky wheel! The doctors can't possibly know Eve as well as you can. They are the experts about medicine, but you are the expert on Eve. Trust yourself that you know when something's not right with her. Eve couldn't ask for a better advocate!
Sharon honey - your sister-in-law and your friend have truly hit the nail on the head. Do whatever you feel is right for Eve. Do not, in any way, ever feel that you are up in anyone's grill! That is exactly where you should be because you are doing what any mother would do for their child - you are protecting your baby and do whatever it takes to safeguard her and her well being. Sending loads and loads of love - xoxoxoxo
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