Saturday, November 23, 2013

busy but good week

This past week was a busy one.  We celebrated Jim's birthday.  It looks like Seamus and Josie are the most excited. 

On Thursday, Eve had her gj tube replaced.  The procedure went very very well.  They gave her double the dose (10ml) of sedative that they did last time and I think they hit the sweet spot.  I brought her Boots doll will us and he went into the room during the procedure.  I was told that one of the nurses put on a puppet show during the replacement and that Eve cooed the entire time.  I explained that when she coos, she is making her happy noise.  The only thing that was a little strange is that her heart rate was pretty high (150 bpm) even when she was given the sedative.  I think it was probably because of anxiety because her normal heart rate is closer to 100.

Anyhow, she now has the Mic-key button and so far so good.  It's day 2 and the valves are working great.  Here's a picture of the new button:

Last night, we had a visit from some of our very favorite people.  Kate and her mom came for a quick visit.  Sweet Kate is a member of our family.  She used to take care of Eve before she moved out West.  We miss her dearly and are always so happy when she's in the area and has time to stop by.   It's wonderful to catch up with friends and feel as though it's been just moments since you last saw them.  Kate fits into our household seamlessly.  She had Eve out of her chair within 5 minutes of seeing her.  Although Eve is a little less expressive than she used to be, we know she was just thrilled to see Kate.  I also know I was thrilled. 

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