neuro today

Today we went to Eve's neurology check-up. She's really lost some tone in her trunk and he noticed she is having more trouble keeping her head up. He also thinks her eyelids are a little more droopy. She is definitely cognitively behind her peers as well. This is something I know, but it is still hard to hear. I also know this is the nature of the beast. She's not going to get better. She's not going to stay the same (always). It's still hard when you have to face it.
I asked the dr. if there was anything we could do about her excessive drooling. He prescribed a medicine that we will try. There are some side effects, but we will start on a low dose and see how it goes. She's been choking/gagging on her saliva if it pools in the back of her mouth and she just soaks her shirts and bibs. Follow-up is in 6 months as usual.

On to more fun stuff. Last week we had a birthday party for two of Eve's stuffed animals. Eve just loves a birthday. She got a new haircut. A little bob with 50's style bangs. Cute.

Here Eve is fooling around with stickers.


School starts next week for both Eve and me. I'm not sure who is more excited.