Sad

Three days ago another member of the mito community died. He was an adorable little boy a year younger than Eve. This news has rocked me. It seemed to come out of the blue (in my perspective). I think I have been living in world of near denial. But I think that's how I manage to survive. If I constantly thought about the awful nature of this disease, I just couldn't function. So as a matter of survival, I focus on the day to day stuff and try not to think about the "what ifs" and the reality of what will be. But then something like this happens and it's like a bucket of cold water in the face. I think what really got me was that this little boy was able to walk and talk. I always figure Eve is so severely affected because she is nonverbal and non-ambulatory, but I have to count my blessings and realize that she is relatively healthy. In fact she came down with a cold a week ago, and has already managed to shake it. She hasn't been in the hospital in a year and a half. But that won't always be the case. I *ache* for the family of this little boy. And I am so scared of what will happen when I am in their shoes.