Monday, September 3, 2012

after a trip to the ER, Eve is better

Eve had a quiet night last night.  When she woke up, I gave her about 20ml of pedialyte and she started gagging.  So, I took her to the doctor in the morning.  Her temp was down and her extremities were quite cold and mottled.  The doctor listened to her stomach and gut and said that her intestines were remarkably quiet.  So, she sent Eve to the hospital for bloodwork and xrays of the chest and abdomen.  Bloodwork came back just fine.  No sign of infection, and all other things looked normal.  The xray didn't show any blockage, but did show that her intestines were full of poop.  Top to bottom.  (How many people get to say their kid is full of shit?) The Dr. felt that this may explain her intolerance to the feedings (by making her feel very full).  So, she called in a script for a glycerin suppository and sent us to the ER for IV fluids. 

We were at the ER for  5 hours.  Ug.  But Eve was a total angel.  She was so quiet and good.  She just chilled out in her wheelchair and even dozed a little.  The put in the IV and took a urine sample to test for a UTI (which she doesn't have).  That process was difficult.  It took 4 attempts to get the catheter in.  Eve was a trooper.  Finally, they gave her 20ml of water through her g-tube to see if she would throw it up. She didn't, so we were allowed to go home. 

I  gave her about an ounce of formula after dinner and it seemed to go down just fine.  But I stopped there.  Tomorrow morning, I'll give her formula very very slowly.  I'll send her to school with just one can of formula (rather than two) and tell them to give it to her very very slowly in the middle of the day.  If she starts to retch or gag, then the feeding is over.  We'll see how it goes.  I'm also calling the GI first thing in the morning to ask for a pump.  If she has a feeding pump, we can give her all of her fluids slowly during the 12 hours she's in bed.  I think it will be much better to have a slow continuous feed rather than dumping large amounts into her stomach 5 times a day. 

So, it was a rough day, but I think things are looking up.  Oh, and the suppository was successful when we got home and she got a bit of poop out.  However, I know there's a ton more in there!  I'm concerned that her intestines aren't working as well as they should, but I think we can manage that with meds if it becomes a problem. 
We're hanging in there.

1 comment:

Heather F said...

Hugs to all of you