So much for doing well.
I wrote too soon.
Last night Eve was up at about 3:30 gagging and retching.  I stopped her feeding pump (she had gotten about 2/3 of the bag).  We changed her diaper and comforted her.  I pulled out the contents of her stomach and she had about 1.5 ounces of formula in there.  I left it out.  We tried to go back to bed, but then she was heaving with her whole body convulsing.  Nothing but a lot of saliva came up (I had emptied her stomach).  She wasn't able to lay down after that because she would retch every time.  So, we put her in her wheelchair and brought her into the living room.  Jim slept on the couch next to her and she dosed a bit.  She did much better sitting up.  She's still a little gaggy, but doing much better.  I"m going to send a can of formula in to school with strict instructions to go very slow.  I'll also put in a call to the GI.  I'm wondering about an anti-nausea medicine and when is it time to look into a gj tube. 
I also need to call the mito doc and update him on Eve's regression. 

Fortunately, the pediatric palliative care nurse is coming over this afternoon.