We're hanging in there. We've been continuing the 3 hours on, 1 hour off feedings throughout the night. This morning, Eve was up at 5am this morning gagging and crying out. We gave her some valium and changed her diaper, but she was still gagging after that. So I got her up and put her in her chair and here we sit.
Yesterday the GI nurse called me to check on the size of Eve's mickey button (current g tube). She needed to know as part of the process of setting up the g-j placement. I asked her about the process and she said it might take a few weeks to set it up. I reminded her that Eve is eating very little (half of the calories/nutrition that the doc wants her to). She made a note and will tell the doctor. If he decides Eve can't sustain functioning on that level, I guess he'll make it happen sooner. As it is, she is so very lethargic. I would be too if I was getting 600 calories a day. Granted, her calorie needs are much fewer than mine due to her size and lack of mobility.
1 comment:
Hey Claffeys - I have just been catching up on Eve's progress. My love is winging its way to you. This must be a very tiring, and worrying time. If we can do anything, please let us know. We are only a couple of hours away - no probs. Sending loads of hugs and love and smiles. I know the smiles are difficult for you, so take ours instead! Love you! Me and the rest of the Higgins'
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