Eve has done pretty well on the feeding pump. We got her system cleared out with laxatives and now she is on a maintenance dose. I still need to fiddle with it because her poops are not solid yet. I've been working up to the recommended amount of formula in her tube. Right now she gets most of it overnight (we run the pump from 6pm to 7am) and this weekend she got another can of formula through the pump from 11am-1pm. I need to figure out a solution for school. I"m planning on having Eve be on nearly continuous feeds, but we have to get her pump to school. Right now it's on a big honking IV pole. They make little backpacks for pumps, but I have to look into that. I'm not sure if I can use a regular backpack or if it has to be made to fit the pump (to position things a certain way). I'll figure something out so Eve can just bring her pump to school with her. Then we can have a few hours off in the afternoon to let her system rest before starting it all over again.
She's doing pretty well. The gagging stopped. She's on Valium every 4 hours while she's awake and that is really making a difference with her leg cramping up. She's my little trooper and I love her.
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