Eve and I are at Baystate hospital.
The nurse called from school today. Eve was gagging and spit up a bit, and it apparently smelled like fecal matter. We called the pediatrician who was more concerned that eve had only had one can of formula in the past 24 hours. She called the GI and after a little back and forth, they decided to have her admitted at Baystate hospital in Springfield (1.5 hours from where we live). Soooo...we packed a bag (or two....you never know) and headed here. We were in the ER for about 4 hours waiting for a room. While we were there Eve got another X-ray of her abdomen and a quick bag of fluids.
It's wierd explaining our situation. Some of the ER docs were talking about looking f or obstruction or infection to look for a cause for eve not tolerating her feeds. I finally looked at one young dr and told her, "I don't expect there to be infection. This is what's happening to her because of the mito. Her systems are shutting down until she dies.". I didn't mean to be harsh, but I had lost patience. So, now we are in a room and trying to rest. Eve is squirming in bed. I don't expect to get much sleep tonight.
Tomorrow we will see the GI. I'm hopeful that we will get a gj tube during our stay. I'll keep updating the blog. Feel free to call. I have my cell.
7 comments:
Sending lots of love and prayers. I hope you get some answers tomorrow.
We miss Eve at school today and are sending so much love...
I wish there were words to say, other than "I'm sorry" and "you are an incredible mom" and "we love you guys."
Janet Frick
Thinking of you and wishing there was something we could do! Sending lots of prayers.
Missing Eve. My day isn't the same without her here with me. Prayers, love and hugs always. Bonnie
Hope you were able to get some rest last night. Hope you are both having a good day today. Sending you lots of prayers and hugs. T, D, A, G and I
You are in my constant thoughts and prayers. I miss seeing Eve in school...tell her I'm thinking of her! Nancy B.
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