Eve had her 7 year well visit yesterday.  She's lost another pound in the last 2 weeks.  She's down to 36.6 from 41 a year ago.

Yesterday at school, the nurse couldn't get Eve's whole feed in.  She started gagging on the last 2oz.  They tried again an hour and a half later, and those 2oz wouldn't go in (via gravity feed).  Oh, and there was still formula in her stomach when they started the whole process from 5.5 hours earlier.

Last night Eve woke up retching at 12:30am.  We stopped the pump and got her calmed down.  She was able to sleep in her bed for the rest of the night.  I didn't turn the pump back on.  That is such a tough decision....stop giving her food that she needs or give it to her so she can vomit it up and be unable to sleep in her bed because of constant retching?  So, she only got about 1 can of formula.  We're just sick with worry.

The pediatrician is going to call the GI to talk to him about the situation.  I told her that no one seems to feel the same sense of urgency that I do.  Eve is just so lethargic and her hair is falling out.  I'll also talk to the pediatric palliative care nurse today. 

On a positive note, Eve is still able to laugh.  A lot.  She actually made Jim mad on Sunday.  He was installing a new front door and ran into a snag.  She laughed her butt off at him.  Gave herself the hiccups.